All is well that ends well! Past one and half years I didn’t post anything. My health is not so good Last week only Doctors gave me clean chit that I am free from all diseases. I am so happy to hear that word. In past six months my life turn upside down I had a rebirth not once thrice. I had two major surgery in my neck then corona. Here I am sharing my Experience.
What is a thyroid?
Sitting at the front of the neck below the Adam’s apple, this tiny butterfly-shaped gland has a huge impact on our life as it produces hormones that regulate our body’s vital functions including metabolism, growth, development, mood and fertility and affecting many of the body’s most important organs, including the heart, brain, liver, kidneys and skin.
Your thyroid plays a crucial role in so many of your body’s systems, but how much do you know about the little gland that has such a huge responsibility in your health and well-being? After my experience it’s the perfect time to learn more about this small but mighty organ and the importance knowing what to look for to ensure your thyroid is functioning as it should.
My Thyroidectomy Experience:
I had a tumour growth in my thyroid gland began in last July. My diagnosis came about from an almost an incidental finding. I had had a ‘feeling’ there was something wrong with my neck for over a year and numerous symptoms which I now know indicate thyroid cancer. When I noticed a persistent ache under my jaw, I assumed I was suffering from dental pain. My dentist identified a slight swelling in my neck and suggested that I had strained a neck muscle.
When the ache refused to go away, my dentist advised to do USG... I had the scan on last Aug which showed a suspicious nodule attached to my right thyroid lobe and advised for further investigation. In the meantime I can see small lump near right collar bone along with swollen neck and pain spread to right shoulder and till my right breast .I started worrying about the pain. My family Dr advised to do Thyroid Nuclear Scan. After 3 days report came with Cold nodule in right lobe of Thyroid. Report Advised to do FNAC. (A cold nodule is a thyroid nodule that does not produce thyroid hormone. On a radioactive iodine uptake test a cold nodule takes up less radioactive material than the surrounding thyroid tissue. A cold nodule may be malignant or benign.). Till then I am very blank about thyroid I thought Dr will prescribe medicine and I will be alright. Without suggesting any medicine after seeing this Report My Dr is serious. He advised to do immediately FNAC.
Fine Needle Aspiration Cytology (FNAC): A thyroid fine needle aspiration biopsy is a procedure that removes a small sample of tissue from your thyroid gland. Cells are removed through a small, hollow needle. The sample is sent to the lab for analysis. For me It done 3 times two times in September then after 6 weeks November end it done. Report came as Suspicious of Follicular /Hurthlecell Neoplasam.
The experience of the FNA is more painful. Directly they injected needle into the thyroid area and to remove some cells for testing. It was painful experience and feel uncomfortable. The wait for the results was much worse. The results came back as thy, no cancer cells was detected in the sample however the cells present were abnormal.
After seeing the report He advised surgery that to you need good hand of Dr.(That means you'll want a highly qualified surgeon to perform the procedure.)
Totally we are blank whom to approach where to find dr? Nothing we don’t know. I send my reports to known persons .but no one have the idea about this surgery. Here came one of my relative whom I met in marriage function is a Doctor and I discussed my problem. She came forward and send my reports to her colleagues .Within an hour I got message and got Drs appointment. Among the finest Neck Surgery Doctors in the city, Dr. Gouri Mam (Tata Memorial Hospital) is the best doctor for Oncosurgery.
We both went and met her she go through all my reports and spoke very kindly and gave me confidence and then advised to do few test in Tmh.
After
seeing reports she confirmed my surgery date. Before that she advised to take
pre anaesthesia test that is different department. They need to give OK
certificate. Therefore a partial thyroidectomy was advised by my Dr.GouriMam
This news was hard to digest. I have always had a major fear my every waking day was spent feeling dread and of the verge of tears, I wasn't sleeping and struggling to eat. I had the surgery on December 24th it underwent 5 hrs. and I kept in ICU for 9 hrs. The operation was successful, though, in the theirs words, ‘challenging’: a large growth was removed from my thyroid gland as well as one of the lobes of the gland itself.
I had my drain taken out the next morning, which was unpleasant but manageable. the pain was minimal and controlled easily by paracetamol .My wound was held together by staples which is pretty shocking to look at to begin with but three days later to have the staples removed. The wound is red and swollen still but very neat I recovered well I discharged from the hospital after 5 days, the worst bit of it all was the staying in hospital
I am waiting for the results of the biopsy test.but I am calm and keeping myself and feed a positive mind. Reports showed that the growth was cancerous: Hurthle cell carcinoma. A second operation would be required to remove the rest of the thyroid gland.
The diagnosis that followed, together with all the information about the necessary course of treatment, was a lot to take in. The thyroidectomy showed that The Doctor explained to me that I would need radioactive iodine treatment after surgery, to destroy any remaining cancerous cells. I would also need to take thyroxine for the rest of my life. Before I could fully digest this news, I found myself preparing for the second surgical procedure. I was really scared about second surgery tat to in same place. My whole family were in shock hard to digest. My second surgery held on March 12th. After my relatively swift recovery from the first operation, it took longer to recover from the second, a total thyroidectomy. This operation became bit serious again I kept in ICU my oxy and pulse went down and I had low-grade fever and operated place bulge made worrisome to Drs. Continuous injections , medicine and Care made me Normal and discharged after 6 days.One happy note my second biopsy test is normal.
For several weeks after surgery, I experienced pain in my neck and felt very tired. Keeping to the prescribed low iodine diet before the radioactive iodine treatment wasn’t too problematic, though I really disliked the isolation in one room once the treatment began.
The overwhelmingly positive news that I received after the uptake scan On April 9th , however, was that the cancerous cells had not spread and that the RAI treatment had been effective in eliminating the remaining thyroid cells.
If I’m honest, my experience of thyroid cancer and its treatment was sometimes frightening and often exhausting. The diagnosis was a shock, the gravity of which didn’t completely hit me until after the second operation. Beyond the discomfort of the surgery, I simply wanted to know how long the treatment would take and when I would be able to return to ‘normal’ life.
For me, the best way to do this was to gather as much of the right information as possible, I think the best way of doing this is to speak to someone who has gone through the same thing. , I had a wonderful family supporting me and excellent doctors but I still felt very isolated and lonely at times, no-one I knew had even heard of thyroid cancer, radioactive iodine, treatment in isolation, challenge scans, becoming hypothyroid for scans and treatment, let alone experienced it.
But unfortunately after my scan I got corona that was worst experience than ever. I had very high temperature with low oxy level .I thought I am going to die.I am in semi-conscious state for twenty days. As mentioned earlier, I had a wonderful family supporting me and excellent doctors saved me once again.
Over the course of the treatment I tried to find strategies for coping. I was determined to stay as positive as possible, despite doubts and anxieties. I found it important to keep my illness in perspective, knowing from the outset that the prognosis for a full recovery was very good. I am incredibly grateful to all the doctors team who treated me and made my return to health possible. While things seemed pretty grim just a few months ago, I can now look forward to making the most of life and realizing long-held ambitions.
I am also indebted to my family and friends whose support was invaluable in so many ways. I am enjoying life to the full now and am more fulfilled personally than I have ever been.
There
is a great deal of fear and anxiety that comes along with a thyroid cancer diagnosis,
but with early detection and modern advancement in treatment technology along
with proper patient education and appropriate care, excellent treatment
outcomes are likely good.
I wanted to post on here my experience so far in the hope that it may help and give reassurance to others in a similar situation. If our journey can help someone else and make it a little easier, then that’s what counts!
